My turn to be in hospital!

Discussion in 'Chin Wag' started by ClissAT, Jan 21, 2019.

  1. ClissAT

    ClissAT Valued Member Premium Member GOLD

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    Every arvo once the major heat of the day has passed, I go out to the main flower garden and throw a bit of water around. I've got 5containers in that garden in which I grow some veg like salad things. But its the exercise I need mostly. The trees cast a good shade over that whole area so its very pleasant being outside for that hour.
    Then I give the horses some carrots. Luckily they don't need feeding now for a few months so I don't have to carry or maneuver the weight of feed bins also.
    But their feet are now 6wks since done last, so this means they are ready again. I use a cordless grinder while sitting on a milk crate. Being liberty trained, my horses will line themselves up for trimming which is all good and which I had trained them for.
    But I never thought I would be so weak I couldn't pick up or hold the running grinder!
    I originally had a 100mm disc cordless grinder which only had mild running force. But its batteries failed and I couldn't get new ones so I was forced to buy a larger 115mm cordless and it has a big back pressure and some twist force when turned on.
    So that's my next challenge.

    Looks like the best I can hope to regain is about 40% use of my right shoulder. Still not allowed to drive and will be dumped out of the HITH program in a week's time. Meaning no taxi support to get to hospital appointments down at SCUH, an hour drive from where I live. Or no help to get scripts from the chemist or buy groceries and carry them upstairs, etc.
    They (govt bodies) give with one hand then take away again with the other! Not funny when you're the one caught in the middle. Last night I got caught in a catch22 situation where there was no way for me to get home from hospital because it was after midnight unless I paid for a private taxi ($160)! And the hospital claimed to be full and wouldn't let me stay, even in the ED. I had to thumb a ride from ambos who'd come down to sunshine coast hospital from north of my home and hope they would break regs to let me onboard for return trip. It was 4am by time I got home with PIC (iv)line bleeding yet again, but no way was I gunna let myself get caught in that situation again!
    So now I'm risking letting the infection into my heart because its risky going all that way to the big hospital because if they finish with me after midnight, there's no way to get home and can't stay at the hospital. And the funding has been so significantly cut from the local Gympie hospital, they don't have anyone at night who can manage the PIC line. So if I went there by ambo, they would be forced to pass me onto the big hospital an hour away.
    Something seriously wrong with the system!

    As I wrote this post the power went out so all I can do is copy/save and come back to it in the morning.

    With this new system Mark has in place and the fact I'm using the android tablet which doesn't truly ditch the web page, my post was still sitting here in the posting box. All I had to do was press 'post reply' and it was live! All good.
     
    Last edited: Feb 15, 2019
  2. Mataeka

    Mataeka Active Member Premium Member

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    Oh ClissAT that sounds horrid i hope you've had better luck since you posted this
     
  3. ClissAT

    ClissAT Valued Member Premium Member GOLD

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    Thanks Mataeka, but things have gotten only a little better.

    The PIC line is out and I nolonger am bound by hospital rules. But I'm still taking strong antibiotics because the bug is still in my system. I have to be careful not to expose myself to situations where I might get hurt and reactivate the bug.

    I've been released from the HITH system with no support at all now and expected to get myself to my own GP, chemist for the meds which only last 5 days, specialist appointments at Gympie hospital, etc.

    Still not supposed to drive but how else do I get around from an area that has no public transport?

    My shoulder is still very painful and no improvement in capacity, so very little movement. Doing things around the property is almost impossible.

    Like I've discovered the mud wasps have built nests in the workings of one roller door in my new shed so that door won't work now. Therefore I cant get the tractor out. I'd wanted to spray weeds and groundsel in the paddocks(a job I should be still able to do as long as I can get on the tractor) but can't get the tractor out of the shed because I can't climb a ladder or lift my arms to clean the mechanism.

    There seems to be a mirriad of stupid little things like that cropping up now. I guess they formed a body of work I just got on and did without giving it a second thought because it was property maintenance.
     
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  4. Mataeka

    Mataeka Active Member Premium Member

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    Sending so much love.
     
  5. OskarDoLittle

    OskarDoLittle Valued Member Premium Member GOLD

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    Clissat check with your hospital about transport for appointments. Qld Health has transport facilities for patients who’ve been advised they can’t drive but are still expected to attend outpatient appointments and reviews. It’s just that hospital staff often don’t think to mention it. It’s a pain to arrange as it involves quite a bit of paperwork (for them & you) but you should be able to access either an ambulance transfer (in the station wagons...not a “proper” ambulance!) or govt subsidised cab etc where there’s no public transport. Worth asking the question anyway - unless you’ve someone who’s happy to chauffeur you around!
     
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  6. ClissAT

    ClissAT Valued Member Premium Member GOLD

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    Thanks for that info Oskar. They were providing that service but it all seemed to dry up once I left the HITH system. Like they expected some other body to take over.
    But so far no other organisation has come forth.
    It sure is a rabbit warren of groups and organisations, individuals and NGOs none of whom seem responsible, but at the same time each pointing the finger at the other for not taking responsibility.
    Then today, 2 groups each decided since the other was offering a small something, they would each withdraw offers of help which effectively left me again with nothing.
    So when the rep of one group rang some time latter, I just let loose about the stupidity and lack of common sense and if they all felt it was ok to make me the meat in the sandwich of their petty arguments, I was going to tell them all to clear off! That I didnt need that sort of extra crap ontop of being so sick.
    She just said ok! Like they really don't care. Obviously they just turn up to work to collect a govt pay check and can't care less about the patients.
    Its really not good enough! I can't help the fact I'm not yet over 65 therefore fall through the cracks of all the care groups. Its like people under 65 aren't supposed to get sick and if they do, how dare they need help.

    All in all I've had to plough my way through 7 dfferent groups and am supposed to get letters of rejection from each in turn. Yes there's a specific order! Only once I have that batch of documents will anyone entertain my need for a service. Luckily !y GP is undertaking that arduous round for me. In the meantime its basically go away and sort yourself out!

    Everyday someone rings then seems shocked I'm not 65! Then says sorry we can't help you. Can't these people read? They obviously got my phone number from somewhere. My other details must have been in the same brief. And then yesterday I even got an email to my very personal email account from one group. How the hell they got that one is beyond me as I never give it out. But obviously the govt knows more about people and collects more info on people than they let on. The premise for emailing was my phone number was supposed to be wrong or disconnected but I can't help it if they try to turn an nbn home number into a mobile number! Just shows we are dealing with non english speaking people or uneducated people or both probably.

    Rant over!!
     
  7. OskarDoLittle

    OskarDoLittle Valued Member Premium Member GOLD

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    I certainly feel your frustration!! Your GP should be able to access ambulance car transfers for you - we used to do that quite a bit. It’s quite annoying that it gets left to the GP as they’re not part of Qld Health or the hospital system & don’t get paid for their time in arranging these things - meantime there’s a bunch of paid administrators sitting around at the hospital. When I was still working in the hospital system we’d arrange a social worker to visit patients (as they’re meant to be UTD with all the services available) who were in your predicament to help them negotiate all this stuff - it’s so difficult to just know where to get help - let alone all their stupid criteria! On top of that, the Govt reduces or changes funding all the time - so I know they were trying to tighten up even on the ambo transfers...haven’t had to do one in a while so I’m not certain these are even still available! Like I said - I certainly get your frustration!
     
  8. ClissAT

    ClissAT Valued Member Premium Member GOLD

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    Thanks Oscar, its a minefield and today it became very real when one administrator rang to tell me she couldn't find any paid support for me.
    So an NGO will do a couple weeks household help to get my house tidy and clean again but that's all they would offer. Still no driving help.

    However one good thing today was the arrival of a home visit physio who was appalled at the state of my shoulders and couldn't believe that the public system let me get to this state. He didn't know if they could be fixed but since he had been allocated 4wks to treat me, he would give it a go. If he could prove improvement he might be able to get more treatment for me. However there will be a huge cost in pain for me and I will be on double opioids for that whole time so I can get through the sessions and sleep at night.

    My next big hurdle is when the antibiotics run out on Monday. My Dr said if there is going to be a relapse it will happen within 48hrs so to be very careful during that time. No stress, no gardening incase I scratch myself & break the skin, etc.

    Its hard to believe I was so close to being put in intensive care and isolation. I didn't realize I was so sick. Nor that I still have to be so careful for quite a long time yet. So it would be really nice if the support providers could sort their stuff out to help me without causing stress. Its bad enough that I can't drive now, a thing that has been such a big part of my life, so I have lost my independence, nor can I do pretty much anything else.
     
  9. Mark

    Mark Founder Staff Member

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    I've had a Golden staph infection @ClissAT and it was serious (nearly lost my arm - again - spent a f/n in hosp) but I wasn't near as bad as you've been!

    What a horrible time you've had over the past few months... Just terrible!

    Are you able to get any help via vet affairs or White Card? I believe all ex-service pers are now eligible for a White Card, at the very least.
     
  10. ClissAT

    ClissAT Valued Member Premium Member GOLD

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    Funny you should mention that, Mark.
    The social worker has her feelers out for me regarding that very thing.
    Because when I first enquired, they just told me to go to my local RSL which of course I wasn't able to do due to no driving.
    Anyway now someone is onto it for me.
    In the meantime, the basic support has finally materialized so after much angst, its all good.
    But having a bit extra from the military would certainly help since the original injury many years ago occurred in their time. Its just that I had been 'paid out' so to speak so they effectively wiped their hands of me.
     
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  11. Mark

    Mark Founder Staff Member

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    Yeah, the system has changed since then and is changing even more now.

    I believe all ex-service pers are now eligible to a White Card at the least. And DVA rang me the other day (for the first time ever) to ask if I needed any assistance around the home etc. It might be worthwhile just giving them a call and having a chat or calling an advocate just to see.
     
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  12. ClissAT

    ClissAT Valued Member Premium Member GOLD

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    Oh that's interesting, mark.
    Yes maybe i should ring on the off chance.
    The support company sent a guy to do 1.5hr housework, but he sat on his phone for an hour, then did 15mins sweeping of verandahs, then said he was finished!
    Left me to scrub the shower floor tiles and mop the kitchen floor where I had sprayed cleaner so these jobs had to be done.
    Then they wanted to send an OH&S person to assess my property as being safe enough for me to stay here! I told them where to shove their rep!
    So yeh it would be good to receive some actual support help that didn't come with strings attached!
     
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